Wednesday, August 3, 2011

Progress Report on Daddy


First, can I just say that it is "hotter than hot" here in Bastrop, La.  My goodness, fall cannot get here quick enough!


Dad's spirits seem to be "lifted" in the past 2-3 days. We are so thrilled with this.  He has been so, so discouraged and down and it appears that he is likely "coming to grips" with his situation and trying to make the best of it.  I'm sure it will wavier from time to time, but he seems to be on the right track at this time.  And, likewise, Sybil and I are encouraged when we see him encouraged.

I wish that I could say that he is progressing physically, but while he doesn't seem to be declining any longer, he isn't making any stride forward either.  But, perhaps that is "just around the corner."  Everyday we look for any sign that he is moving forward.  


One of the most frustrating things for Dad and us is that in our area there is little to nothing known about Guillain Barre Syndrome.  His Dr. has never had a patient with GBS and the facility he is in has never had a patient with it and
his Physical Therapist has worked with one other person. I truly doubt that his team of Neurologists in Shreveport at LSU have seen that many cases of it, but they certainly were aggressive in their treatment and care. Because of this, it is imperative that we learn and research all that we can about the condition so that we can make sure that he is receiving the proper care and therapy.  Joel connected with the Guillain Barre Foundation and that has proven to be a great source of knowledge for us and we have joined a forum on the internet where folks share lots of info about GBS.  I am going to try and contact his chief Neurologist at LSU tomorrow and ask him a few questions. 
Knowledge is power and we are in search of all of the knowledge available to us.


Again, our thanks to each and every one of you for your continued prayers.  We know that they are being answered and we know they are what keep us afloat.


Added note:  if Dad is on your email forward list, please remove him for now.  Sybil and I are keeping his mailbox cleaned out and we pretty much have it under control except for forwards.  If and when he is back on his computer I will let you know.  Thanks so much!


Stay cool and be careful in this extreme heat!

Lea
Lea

Hi there! My name is Lea. I've been wife to the best Hubby for 44 years....Mom to a son and daughter....CiCi to 4 precious Grans....lover of family and friends....enjoy laughter and a good time....shopper....picture taking maniac....maker of delicious fudge....organizational enthusiast....memory maker....Southern Belle...and most importantly.....a Child of the King! Welcome to my little corner!

10 comments:

  1. I will continue to keep you and your family in prayer.
    Blessings to you all-

    Laura
    White Spray Paint

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  2. Glad to hear your dad's spirits have been better these last couple of days! I will continue to keep you all in prayer.

    I just read your previous post...I've been behind it seems. But just wanted to tell you that I think your hair is darling, and to tell you that I agree with the others...you don't look even close to 59! And you know what I think? I think that group of ladies were celebrating a bachlorette party. Just thinking this because when my daughter celebrated hers all of her girlfriends wore black, and she was told to wear white...and then they gave her a hat with a veil on it to wear. It was soo cute. I have seen several bachlorette parties done this way. They went to dinner that way.

    Hope you stay cool in all that heat!

    Hugs, Debbie

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  3. I am glad his spirit has improved.
    I pray you find helpful information and also the people who are working with him should do further research to help him. Like you said knowledge is power.

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  4. So thankful that your daddy's spirits are lifted. I am continuing to pray for His physical healing!

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  5. Glad his spirits are up and there isn't any physical decline. Praying for God's best.~ Mom had a mild stroke this evening and I have been at the hospital all night. Breathe a prayer for her if you get a chance. Grace and peace . . .

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  6. Glad his spirits have been lifted!! Only 82 today here. I will take it.

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  7. In agreement with everyone else..
    I'm glad your dad's spirits are lifted.

    So glad you have been able to make connections concerning GBS.
    Even tho his health team have not had much experience with GBS it sounds like they are doing what they can.

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  8. Keeping you and your family in my prayers. Take care of yourself.

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  9. I am so glad he is in better spirits....that's good for him and you...I will continue to pray for all of you.....

    I hope you can find all the information that you need to make important decisions....

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  10. i'm so sorry this has been such a long and hard time. my family just went through this, with my grandpa going to be with the Lord. it's so tough. praying for you all.

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So glad you stopped by and hope you enjoyed your visit. I love your comments and read each and every one of them and I always try to reply to them. Blessings to you this day!